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  • 2010 December 09
    From the daily archives: Thursday, December 9, 2010

    Someone on my IBC support list brought this amazing story to our attention.  Megan Waldbridge Nelson had seen an e-mail about IBC, which had been circulating on the internet.  It had been years ago, but she remembered, and advocated for herself.  The knowledge that she had in her mental rolodex, and her decision to act on that knowledge was lifesaving.

    This morning I spoke about IBC to a group of nursing students at my local coffee shop.  I saw a woman in scrubs, wearing a pink ribbon.  I saw my opportunity!  I thanked her for wearing the ribbon, and asked her if she had ever heard of Inflammatory Breast Cancer.  She had not, and her classmates had not either, although they had already learned about breast cancer.

    Since I became part of the internet IBC community, it is clear to me that a lot of us are committed to getting the word out, but still the majority of women I speak with have no idea about Inflammatory Breast Cancer.  Nursing students didn’t even know!  Every one of us who can speak about it are needed voices.  Megan is my hero today because she used the opportunity to make her story public, so other women can save their own lives as she has done.

    You can see her story by clicking on the link:

    http://www.9news.com/rss/article.aspx?storyid=168708

    I’m having a hard time getting the link to work!  If you are too, just go to www.9news.com and search Megan Waldman.

    For women facing IBC, the support list is a hugely important and valuable resource:

    http://www.ibcsupport.org/

    for more information and the most current research on IBC:

    ibcresearch.org

    I am alive today because of research (which gave us herceptin, relatively new when I was diagnosed), doctors who were knowledgeable about IBC, and because I took care of myself.  More and more women are speaking up to make sure that women and men know to take care of themselves.  This is not just true of IBC, but of other cancers as well.  The work is never done, but we make progress, and keep on keeping on.

    Thanks Megan.  We’ll be watching you!

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